Center for Bioethics faculty member Professor Susan Wolf will present a talk "Should Research Participants Get Back Their Own Results and Incidental Findings?" on Monday, April 21 at 4 pm in the Northrop Best Buy Theater. The event is free and open to the public and is cosponsored by Northrop Presents and the Consortium on Law and Values. Visit Institute for Advanced Study for further information.
Center for Bioethics Master’s candidate Richard Weinmeyer, JD, M.Phi., was quoted in The Washington Post’s Health, Science & Environment article "Gay men divided over use of HIV prevention drug.”
Center for Bioethics faculty member Jennifer Needle, MD, MPH, recently presented a talk on “Uncertainty in Shared Decision Making” at the University of Minnesota’s Department of Medicine Grand Rounds.
Prof. Wolf’s research impacts U.S. & U.K. policy on genomics
The past week has seen significant new impacts from grant projects led by Prof. Wolf on return of results and incidental findings. On March 31, the Wellcome Trust and Medical Research Council-- the major funders of biomedical research in the U.K.-- published a new “Framework on the Feedback of Health-Related Findings in Research.” Its first cite is to NIH-supported work on these issues led by Prof. Wolf at the University’s Consortium on Law and Values in Health, Environment & the Life Sciences. The Framework goes on to discuss the 3-tier approach generated by that work. This new Framework will impact all research supported by the Wellcome Trust and MRC.
On March 27, Prof. Wolf participated in a plenary panel on these issues at the annual meeting of the American College of Medical Genetics and Genomics (ACMG) in Nashville, where ACMG announced a major improvement in policy. The panel reexamined the controversial policy on incidental findings that ACMG had published a year ago. A Science piece by Wolf and two coauthors had criticized the ACMG approach for requiring analysis of 56 extra genes whenever clinical sequencing is performed, with no opt-out for patients. After Thursday’s panel in Nashville, ACMG announced that its Board had decided to change ACMG policy to provide an opt-out to allow patient choice.
An article by Leigh Turner, PhD, related to the Markingson case appeared in Impact Ethics.
Center Faculty Carl Elliott, MD, PhD, will be the guest speaker at UW-Eau Claire on Wednesday, March 26, as part of The Forum Series. His forum topic is the same as the title of his 2010 book, White Coat, Black Hat: Adventures on the Dark Side of Medicine.
Center for Bioethics faculty member, Steven Miles, MD, is speaking April 15 for a monthly event, Conversations of the Valley, a public affairs luncheon series sponsored by the St Croix Valley Foundation.
"The International Movement Against Torture Doctors"
Conversations of the Valley
Tuesday, April 15, 2014, 11:30-1:00 pm
Grand Banquet Center, Stillwater
Steven Miles, MD, is quoted in an article in Truthout.org regarding force-feeding of prisoners at Guanatanamo Bay.
An article by Leigh Turner, PhD, regarding the Dan Markingson case appeared in MinnPost.
Desiree Abu-Odeh, a 2012 Master of Arts in Bioethics graduate
The Center for Bioethics is pleased to announce that Desiree Abu-Odeh, a 2012 Master of Arts in Bioethics graduate, has been admitted to the Sociomedical Sciences PhD program at Columbia University. In addition, Desiree has been selected for an NIH Predoctoral Fellowship in Gender, Sexuality, and Health. Congratulations, Desiree!
Prof. Wolf appointed to public health panel
Prof. Susan Wolf has been appointed to an expert panel on the role of population health in all professions, as part of an effort by the Association of Schools and Programs of Public Health (ASPPH) to re-envision public health education. ASPPH has convened a task force on “Framing the Future: The Second Hundred Years of Education for Public Health.” The Health in All Professions Expert Panel will produce a report to be included in the work of the Framing the Future initiative. For more on that initiative.
Prof. Wolf discusses incidental findings on MPR
Professor Susan Wolf appeared on MPR’s The Daily Circuit on Feb. 18 along with Dr. Danielle Ofri, Bellevue Hospital, discussing the current debate about returning extra information, or incidental findings, identified during research or clinical testing. Prof. Wolf described her work funded by NIH and the Robert Wood Johnson Foundation on returning research findings in genetic/genomic and imaging research, including a current project with the Mayo Clinic on returning results to the families of deceased probands in a pancreatic cancer registry. Read more and listen to the broadcast.