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Faculty Articles


Center for Bioethics - University of Minnesota [articles]

 

Dianne Bartels, RN, MA, PhD

McCarthy Veach P, Bartels D, LeRoy B. Back to the Beginning: A Reciprocal Engagement Model of Genetic Counseling, Journal of Genetic Counseling, In Revision.

Song J, Bartels D, Ratner E, Alderton L, Hudson B, Ahluwalia J. Dying on the Streets: Homeless Persons’ Concerns and Desires About End of Life Care. Journal of General Internal Medicine 2007;22:435-441.

Song J, Ratner E, Bartels D, Alderton L, Hudson B, Ahluwalia J. Experiences With and Attitudes Toward Death and Dying Among Homeless Persons. Journal of General Internal Medicine 2007;22:427-434.

Kempainen R, Bartels D, McCarthy Veach P. Life on the Receiving End: A Qualitative Analysis of Health Providers’ Illness Narratives. Academic Medicine 2007;82(2):207-213.

Bartels D. Disclosing Risks of New Technologies: Ethical Challenges for Physicians, Patients, and Companies. Minnesota Journal of Law, Science and Technology 2005;7(1):183-188.

Song J, Ratner E, Bartels D. Homelessness and End of Life Care. Journal of Clinical Ethics 2005;16(3):251-261.

 

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Carl Elliott, MD, PhD

Elliott C. The Mixed Promise of Genetic Medicine. New England Journal of Medicine, 2007;356(20):2024-2025.

 

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Jeffrey Kahn, PhD, MPH

DeBruin D, Scholder S, Kahn J, Mastroianni A, Marshall MF, Lantos J, Sugarman J. Educational Approaches to the Responsible Conduct of Clinical Research: An Exploratory Study. Academic Medicine 2007;1(82).

Kahn J. What Happens When Politics Discovers Bioethics. Hastings Center Report 2006;36(3):10.

Kahn J, Mastroianni A. Creating a Stem Cell Donor: A Case Study in Reproductive Genetics. Kennedy Institute of Ethics Journal 2004;14(1):81-96.

Wolf S, Kahn J, Wagner J. Using Preimplantation Genetic Diagnosis to Create a Stem Cell Donor: Issues, Guidelines and Limits. Journal of Law, Medicine and Ethics 2003;31(3):327-339.

Reprinted in: Daar, J., ed., Reproductive Technologies and the Law, LexisNexis Law School Publishing, forthcoming.

Mastroianni A, Kahn J. Swinging on the Pendulum: Shifting Views of Justice in Human Subject Research. Hastings Center Report 2001;31(3).

Kahn J. It’s a Small World After All: Ethics and the Response to SARS. Hastings Center Report 2003;33(3):6.

Kahn J. Three Views of Organ Procurement Policy: Moving Ahead or Giving Up? Kennedy Institute of Ethics Journal 2003;13(1):45-50.

Delmonico F, Arnold R, Scheper-Hughes N, Siminoff L, Kahn J, Youngner S. Ethical Incentives – Not Payment – For Organ Donation. New England Journal of Medicine 2002;346(25):2002-2005.

Childress J, Faden R, Gaare R, Gostin L, Kahn J, Bonnie R, Kass N, Mastroianni A, Moreno J, Nieburg P. Public Health Ethics: Mapping the Terrain. The Journal of Law, Medicine and Ethics 2002;30(2):170-178.

Kahn J. Organs and Stem Cells: Policy Lessons and Cautionary Tales. Hastings Center Report 2007;37(2):11-12.

 

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Barbara Koenig, PhD

Koenig B, Greely H, McConnell L, et al. Genetic Testing for BRCA1 and BRCA2: Recommendations of the Stanford Program in Genomics, Ethics, and Society. Journal of Women's Health 1998;7(5):531-545.

McConnell L, Koenig B, Greely H, et al. Genetic testing and Alzheimer Disease: Has the Time Come? Nature Medicine 1998;4(7): 757-759.

Press N, Fishman J, Koenig B. Collective Fear, Individualized Risk: The Social and Cultural Context of Genetic Screening for Breast Cancer. Nursing Ethics 2000;7(3):237-249.

Lee S, Mountain J, Koenig B. The Meanings of "Race" in the New Genomics: Implications for Health Disparities Research. Yale Journal of Health Policy, Law, and Ethics 2001;1(1):33-75.

Crawley L, Marshall P, Lo B, Koenig B. Strategies for Culturally Effective End-of-Life Care. Annals of Internal Medicine 2002;136(9):673-679.

Drought T, Koenig B. "Choice" in End-of-Life Decision Making: Researching a Fact or a Fiction? The Gerontologist 2002;42:114-128.

Koenig B, Back A, Crawley L. Qualitative Methods in End of Life Research: Recommendations to Enhance the Protection of Human Subjects. Journal of Pain and Symptom Management 2003;25(4):S43-S52.

Caron L, Karkazis K, Swan G, Raffin T, Koenig B. Nicotine Addiction through a Neurogenomic Prism: Ethics, Public Health, and Smoking. Nicotine and Tobacco Research 2005;7(2):181-197.

Mueller P, Montori V, Bassler D, Koenig B, Guyatt G. Ethical Issues in Stopping Randomized Trials Early Because of Apparent Benefit. Annals of Internal Medicine 2007;146:878-881.

 

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Bonnie LeRoy, MS

McCarthy Veach P, Bartels D, and LeRoy B. Ethical and Professional Challenges Posed by Patients with Genetic Concerns: A Report of Focus Group Discussions with Genetic Counselors, Physicians, and Nurses. Journal of Genetic Counseling 2001;10(2):97-119.

Bower M, McCarthy Veach P, Bartels D, and LeRoy B. A Survey of Counselors’ Strategies for Addressing Ethical and Professional Challenges in Practice. Journal of Genetic Counseling 2002;11(3):163-186.

McCarthy Veach P, Bartels D, and LeRoy B. Defining Moments: Catalysts for Professional Development. Journal of Genetic Counseling 2002;11(4):277-280.

Weil J, Ormond K, Peters J, Peters K, Biesecker B, LeRoy B. The Relationship of Nondirectiveness to Genetic Counseling: Report of a Workshop at the 2003 NSGC Annual Education Conference. Journal of Genetic Counseling 2006;15(2):85-93.

Thomas B, McCarthy Veach P, LeRoy B. Is Self-Disclosure Part of the Genetic Counselor's Clinical Role? Journal of Genetic Counseling 2006;15(3):163-177.

Pirzadeh S, McCarthy Veach P, Bartels D, Kao J, LeRoy B. Do Genetic Counselors Share Similar Values? A National Survey. Submitted and accepted for publication in the Journal of Genetic Counseling in 2007.

McCarthy Veach P, Bartels D, LeRoy B. Back to the Beginning: A Reciprocal-Engagement Model of Genetic Counseling Practice. Manuscript submitted for publication to the Journal of Genetic Counseling in 2007.

 

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Steven Miles, MD

Miles S, Cranford R, Schultz A. The Do-Not-Resuscitate Order in a Teaching Hospital. Annals of Internal Medicine 1982;96(5):660-664.

Miles S, August A. Courts, Gender, and the "Right to Die." Law, Med, and Health Care 1990;18:85-95.

Miles S. Informed Demand for "Non-Beneficial" Medical Treatment. New England Journal of Medicine 1991;325:512-515.

Miles S, Irvine P. Deaths Caused by Physical Restraints. Gerontologist 1992;32:762-766.

Parker K, Miles S. Deaths Caused by Bedrails. Journal of the American Geriatrics Society 1997;45:797-802.

Miles S. Deaths Between Bedrails and Air Pressure Mattresses. Journal of the American Geriatrics Society 2002;50:1124-1125.

Miles S. Abu Ghraib: It's Legacy for Military Medicine. Lancet 2004;364:725-29.

Miles S. Medical Ethics and the Interrogation of Guantanamo 063. American Journal of Bioethics 2007;7(4):1-7.

Miles S, Marks L. United States Military Medicine in War on Terror Prisons. Human Rights Library of the University of Minnesota, 2007.

 

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Jordan Paradise, JD

Andrews L, Paradise J, Holbrook T, Bochneak D. When Patents Threaten Science. Science and Law 2006;314:1395-1396.

Paradise J, Wolf S (eds.) The Risks Posed by New Biomedical Technologies: How Do We Analyze, Communicate & Regulate Risk? Lahey Clinic Medical Ethics Journal 2006;13(3):5-8.

Paradise J, Janson C. Decoding the Research Exemption. Nature Reviews Genetics 2006;7(2):148-154.

Paradise J. Lessons from the European Union: The Need for a Post-Grant Mechanism for Third Party Challenge to U.S. Patents. Minnesota Journal of Law, Science & Technology 2005;7(1):315-326.

Paradise J, Andrews L, Holbrook T, Patents on Human Genes: An Analysis of Scope and Claims. Science and Law 2005;307:1566-1567.

Andrews L, Paradise J. Gene Patents: The Need for Bioethics Scrutiny and Legal Change. Yale Journal of Health Policy, Law, and Ethics 2005;5:403-412.

Paradise J. European Opposition to Exclusive Control Over Predictive Breast Cancer Testing and the Inherent Implications for United States Patent Law and Public Policy: A Case Study of the Myriad Genetics’ BRCA Patent Controversy. Food & Drug Law Journal 2004;59:133-154.

Andrews L, Buenger N, Bridge J, Rosenow L, Stoney D, Gaensslen R, Karamanski T, Lewis R, Paradise J, Inlander A, Gonen D. Constructing Ethical Guidelines for Biohistory. Science and Law 2004;304:215-216.

 

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Edward Ratner, MD

Song J, Bartels D, Ratner E, Alderton L, Hudson B, Ahluwalia J. Dying on the Streets: Homeless Persons' Concerns and Desires About End of Life Care. Journal of General Internal Medicine 2007;22:435-441.

Song J, Ratner E, Bartels D, Alderton L, Hudson B, Ahluwalia J. Experiences With and Attitudes Toward Death and Dying Among Homeless Persons. Journal of General Internal Medicine 2007;22:427-434.

Finkelstein S, Ratner E. Managing Chronic Disease Through Home Telehealth. Minnesota Medicine 2006;89:42-45.

Song J, Ratner E, Bartels D. Dying While Homeless: Is It a Concern When Life Itself is Such a Struggle? Journal of Clinical Ethics 2005;16:251-261.

Ratner E, Bartels D, Song J. A Perspective on Homelessness, Ethics, and Medical Care. Minnesota Medicine 2004;87:50-52.

Ratner E, Norlander L, McSteen K. Death at Home Following a Targeted Advance-Care Planning Process at Home: The kitchen Table Discussion. Journal of the American Geriatrics Society 2001;49:778-781.

 

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David Satin, MD

Satin D. Paying Physicians and Protecting the Poor. Minnesota Medicine 2006;89(4):42-44.

Satin D. Maximum-Strength Health Care May Cause Dangerous Side Effects. Minneapolis Observer February 2005.

Satin D. More Realism About Informed Consent. The Journal of Laboratory and Clinical Medicine 2005;145:292-294.

Stovitz S, Satin D. Ethics and the Athlete:Why Sports Are More Than a Game But Less Than a War. Clinics in Sports Medicine 2004;23:215-225.

Stovitz S, Satin D. Professionalism and the Ethics of the Sideline Physician. Current Sports Medicine Reports 2006;5(3):120-124.

 

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John Song, MD, MPH, MAT

Song J, Bartels D, Ratner E, Alderton L, Hudson B, Ahluwalia J. Dying on the Streets: Homeless Persons' Concerns and Desires About End of Life Care. Journal of General Internal Medicine 2007;22:435-441.

Song J, Ratner E, Bartels D, Alderton L, Hudson B, Ahluwalia J. Experiences With and Attitudes Toward Death and Dying Among Homeless Persons. Journal of General Internal Medicine 2007;22:427-434.

Song J, Ratner E, Bartels D. Dying While Homeless: Is It a Concern When Life Itself Is Such a Struggle? Journal of Clinical Ethics 2005;16:251-261.

Ratner E, Bartels D, Song J. A Perspective on Homelessness, Ethics, and Medical Care. Minnesota Medicine 2004;87:50-52.

Sorenson T, Song J, Biebighauser S. The Limitations of Good Intentions: Prescribing Medications for the Uninsured. Journal of Health Care for the Poor and Underserved 2004;15(2):152-60.

Ratner E, Song J. Ethics of Dying at Home. Home Health Management 2003;15:123-126.

Song J. Homelessness and Clinicial Ethics. Healthcare Ethics Committee Forum 2002;14:209-216.

Miles S, Song J. Behavioural Assessment for HIV Prevention: A Model Programme Design. International Journal of STD & AIDS 2001;12(11):710-716.

Song J, Safaiaen M, Strathdee S, Celentano D. The Prevalence of Homelessness Among Injection Drug Users With and Without HIV Infection. Journal of Urban Health 2000;77:678-687.

Terry P, Vettese M, Song J, Forman J, Haller K, Miller D, Stallings R, and Sulmasy D. End of Life Decision-Making: When Patients and Surrogates Disagree. Journal of Clinical Ethics 1999;10(4):286-93.

Song J, Terry P. A Pedophilic Pediatrican: The Conflicting Obligations. Journal of Clinical Ethics 1999;10(2):142-150.

 

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Beth Virnig, PhD, MPH

Bradley C, Given C, Luo Z, Dahman B, Virnig B. Diagnosis of Advanced Cancer Among Elderly Medicare and Medicaid Patients. Medical Care 2007 May;45(5):410-9.

Virnig B, Scholle S, Chou A, Shih S. Efforts to Reduce Racial Disparities in Medicare Managed Care Must Consider the Effects of Geography.
American Journal of Managed Care 2007;13:51-56.

Virnig B, Ma H, Hartman L, Moscovice I, Carlin B. Access to Home-based Hospice Care for Rural Populations: Identification of Areas Lacking Service. Journal of Palliative Medicine, 2006;9:1292-1299.

 

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