For Research Subjects
Helpful Links:
Frequently Asked Questions:
What does it mean to be a research subject?
- Being a research subject means that you volunteer to let a researcher observe how you respond to the procedures, tests, medicines or devices being studied.
Is participating in a study a good way to get free health care?
- It depends. Clinical research differs from clinical care in very important ways.
- The goal of clinical care is to improve the health or comfort of one person. The goal of research is to produce reliable knowledge.
- The individual patient benefits from clinical care. Future patients and the community at large benefit from research.
- A health care provider applies the best known therapies to improve his/her patient’s health. A researcher does not know whether the medicine or procedure he/she is studying is effective.
What are a research subject’s rights?
- To have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research.
- To refuse to be in the study at all, or to stop participating at any time after you begin the study.
- To be told what the study is trying to find out, what will happen to you, and what you will be asked to do if you are in the study.
- To be told about the reasonably foreseeable risks of being in the study.
- To be told about the possible benefits of being in the study.
- To be told whether there are any costs associated with being in the study and whether you will be compensated for participating in the study.
- To be told who will have access to information collected about you, and how your confidentiality will be protected.
- To be told whom to contact with questions about the research, about research-related injury, and about your rights as a research subject.
- If the study involves treatment or therapy, you have the right to be told about the other non-research treatment choices you have, where treatment is available should you have a research-related injury, and who will pay for research-related treatment.
Where can I find information about studies that are recruiting subjects?
http://www.ahc.umn.edu/research/trials/
Is there someone I can talk to about being a research subject?
Laure Campbell
612-624-2621 or campb020@umn.edu
Directions and parking
http://www.gcrc.med.umn.edu/gcrc/location/
|
